Citizens' Jury on access to health information

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Sunday, January 31st, 2021

Event Summary

Members of the public are being invited to apply to become members of a Citizens' Jury on access to health information.

As individuals, our healthcare professionals need to be able to review our health records to best determine our care. However, that information can also serve the public interest by offering key insights into the development and innovation of our health services for future generations.

One might ask should our health information only be used for our own individual needs? Or should it also assist in wider societal healthcare needs? Can a balance perhaps be struck between both positions that ensures transparency and trust and, if so, how?

The aim of this Citizens' Jury initiative by the Irish Platform for Patients’ Organisations, Science & Industry (IPPOSI) is to learn more about our health information, to deliberate on who might access those records, and to what end.

The jury will hear from experts offering various perspectives on these matters. Its recommendations will be submitted to policy-makers in Ireland to inform the development of new health information legislation, as well as the creation of a national Electronic Health Record.

IPPOSI is looking for people aged 18 years and above, from diverse backgrounds, and who are resident in Ireland, to join this Citizens’ Jury.

The jury of 25 people will be broadly representative of the Irish population, and will sit virtually during the month of April for a series of two-hour sessions. Successful applicants will receive a €400 gratuity; however, the bigger reward will be the opportunity to have your say on this matter of huge national importance.

Application can be made online at www.ipposi.ie/citizensjury and the closing date is Sunday January 31, 2021.

Price: Free

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The event runs from 12:00am to 11:55pm on the following dates.
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